The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model\u2014\u201cregistered access\u201d\u2014to increase and improve access to data requiring an agreement to basic terms and conditions, such as the use of DNA sequence and health data in research. A registered access policy would enable a range of categories of users to gain access, starting with researchers and clinical care professionals. It would also facilitate general use and reuse of data but within the bounds of consent restrictions and other ethical obligations. In piloting registered access with the Scientific Demonstration data sharing projects of GA4GH, we provide additional ethics, policy and technical guidance to facilitate the implementation of this access model in an international setting.<\/p>\n","protected":false},"excerpt":{"rendered":"
The Global Alliance for Genomics and Health (GA4GH) proposes a data access policy model\u2014\u201cregistered access\u201d\u2014to increase and improve access to data requiring an agreement to basic terms and conditions, such as the use of DNA sequence and health data in research. A registered access policy would enable a range of categories of users to gain […]<\/p>\n","protected":false},"featured_media":0,"template":"","meta":{"msr-url-field":"","msr-podcast-episode":"","msrModifiedDate":"","msrModifiedDateEnabled":false,"ep_exclude_from_search":false,"_classifai_error":"","msr-author-ordering":null,"msr_publishername":"Springer Nature","msr_publisher_other":"","msr_booktitle":"","msr_chapter":"","msr_edition":"European Journal of Human Genetics","msr_editors":"","msr_how_published":"","msr_isbn":"","msr_issue":"","msr_journal":"European Journal of Human Genetics","msr_number":"","msr_organization":"","msr_pages_string":"","msr_page_range_start":"","msr_page_range_end":"","msr_series":"","msr_volume":"","msr_copyright":"(c) The Authors 2018","msr_conference_name":"","msr_doi":"10.1038\/s41431-018-0219-y","msr_arxiv_id":"","msr_s2_paper_id":"","msr_mag_id":"","msr_pubmed_id":"","msr_other_authors":"","msr_other_contributors":"","msr_speaker":"","msr_award":"","msr_affiliation":"","msr_institution":"","msr_host":"","msr_version":"","msr_duration":"","msr_original_fields_of_study":"","msr_release_tracker_id":"","msr_s2_match_type":"","msr_citation_count_updated":"","msr_published_date":"2018-08-02","msr_highlight_text":"","msr_notes":"","msr_longbiography":"","msr_publicationurl":"https:\/\/www.nature.com\/articles\/s41431-018-0219-y","msr_external_url":"","msr_secondary_video_url":"","msr_conference_url":"","msr_journal_url":"","msr_s2_pdf_url":"","msr_year":0,"msr_citation_count":0,"msr_influential_citations":0,"msr_reference_count":0,"msr_s2_match_confidence":0,"msr_microsoftintellectualproperty":true,"msr_s2_open_access":false,"msr_s2_author_ids":[],"msr_pub_ids":[],"msr_hide_image_in_river":0,"footnotes":""},"msr-research-highlight":[],"research-area":[13553],"msr-publication-type":[193715],"msr-publisher":[],"msr-focus-area":[],"msr-locale":[268875],"msr-post-option":[],"msr-field-of-study":[],"msr-conference":[],"msr-journal":[],"msr-impact-theme":[],"msr-pillar":[],"class_list":["post-499148","msr-research-item","type-msr-research-item","status-publish","hentry","msr-research-area-medical-health-genomics","msr-locale-en_us"],"msr_publishername":"Springer Nature","msr_edition":"European Journal of Human Genetics","msr_affiliation":"","msr_published_date":"2018-08-02","msr_host":"","msr_duration":"","msr_version":"","msr_speaker":"","msr_other_contributors":"","msr_booktitle":"","msr_pages_string":"","msr_chapter":"","msr_isbn":"","msr_journal":"European Journal of Human Genetics","msr_volume":"","msr_number":"","msr_editors":"","msr_series":"","msr_issue":"","msr_organization":"","msr_how_published":"","msr_notes":"","msr_highlight_text":"","msr_release_tracker_id":"","msr_original_fields_of_study":"","msr_download_urls":"","msr_external_url":"","msr_secondary_video_url":"","msr_longbiography":"","msr_microsoftintellectualproperty":1,"msr_main_download":"499151","msr_publicationurl":"https:\/\/www.nature.com\/articles\/s41431-018-0219-y","msr_doi":"10.1038\/s41431-018-0219-y","msr_publication_uploader":[{"type":"file","title":"Registered access authorizing data access","viewUrl":"https:\/\/www.microsoft.com\/en-us\/research\/wp-content\/uploads\/2018\/08\/Registered-access-authorizing-data-access.pdf","id":499151,"label_id":0},{"type":"url","title":"https:\/\/www.nature.com\/articles\/s41431-018-0219-y","viewUrl":false,"id":false,"label_id":0},{"type":"doi","title":"10.1038\/s41431-018-0219-y","viewUrl":false,"id":false,"label_id":0}],"msr_related_uploader":"","msr_citation_count":0,"msr_citation_count_updated":"","msr_s2_paper_id":"","msr_influential_citations":0,"msr_reference_count":0,"msr_arxiv_id":"","msr_s2_author_ids":[],"msr_s2_open_access":false,"msr_s2_pdf_url":null,"msr_attachments":[{"id":0,"url":"https:\/\/www.nature.com\/articles\/s41431-018-0219-y"}],"msr-author-ordering":[{"type":"user_nicename","value":"Ravi Pandya","user_id":33353,"rest_url":"https:\/\/www.microsoft.com\/en-us\/research\/wp-json\/microsoft-research\/v1\/researchers?person=Ravi Pandya"},{"type":"text","value":"Stephanie O. 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